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@forluca

For Luca

forluca

Inspirational life story of my son and amputee Luca... Mixed with a love for beer, coffee and cycling...

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You still use the phrase... 'Let's go for a walk Dad...' I sometimes correct myself when saying it but realise that it is as normal as it ever was... What Sundays are made for... Walks,  Wheels,  Spins,  Strolls,  Cruising... Whatever the phrase Luca you continue to have a hunger to do more than you ever could... Some days I wish I had wheels to keep up 😉  #forluca #son #sundayfunday #weekend #amputeelife #amputee #pose #inspiration #lifestory #proudfather #inspireothers #wheelchair #sea #wheels #spinergy #walks
Saturdays should always end with coffee and walks by the sea... Well peppermint tea and a prepack sandwiches by the barrage 🙈🙈 I wouldn't change it for the world... You are the very best of me boys... Plus you both rock double denim like no one I know... 😉  #forluca #brothers #sons #brotherlylove #dad #proudfather #smile #selfie #loveis #love #weekend #saturday #sea #coffee #tea #doubledenim #amputeelife #amputee #boysclub #sons
Meningitis does not only effect those who contract it... It makes everyone around them feel helpless and weak... There is one woman who through this has shown strength beyond belief... Never shedding a tear in front of you she has dedicated her life to being the most amazing role model to you both... Life is never perfect... Some people just deal with the imperfection like a Swan gilding on the lake... Happy Birthday Mum!  From your amazing boys.  #mum #forluca #son #smile #loveis #love #support #sacrifice #meningococcal #septicaemia #meningitis #inspiration #lifestory #inspireothers #menigitisawareness #birthday #weekend
'Where are you Dad...' 'At the services handsome..' 'I've got something to show you...' 'Wow! You are braver than anyone I know Luca!' 'Thanks Dad... My clip on legs rock don't they!!' They sure do handsome!! The loss of limbs is driven by the bodies survival mode... As the blood leaks out of every blood vessel and vein it stops pumping blood to the parts it does not need... It protects the head and organs for as long as it can... As we pumped more and more blood and fluid into Luca he was holding the equivalent of 50litres of fluid in his body and tissue as it literally leaked out... He was so unrecognisable that we posted pics on his wall for the Nurses and Consultants to know who they were saving!  Know the symptoms... Know how fast to react... Google Meningococcal Septicaemia and spend 2mins learning tonight... #forluca #son #smile #loveis #love #support #sacrifice #father #dad #proudfather #share #lifestory #amputeelife #amputee #cliponlegsrock #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #inspiration #menigitisawareness #vans #ossur
Did you know that when Luca would go in for surgery or dressing changes he would always do one thing... - - - - Hide syringes full of water under his sheets to squirt anyone who came near him... Eventually the staff would come prepared in aprons and have spare clothes... This culminated in him taking a full size squirter to one of his sessions.  It can seen here next to his arm... It made him feel empowered and in control when so much was out of his control... It is the ones around you who make your life an adventure that is full of wonder handsome.  It has never been about the loss... Make sure you all do one thing this week and know the signs and symptoms of all forms of Meningitis... #forluca #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #inspiration #lifestory #proudfather #amputeelife #amputee #menigitisawareness #loveis #love #support #sacrifice
'Do you know the symptoms Luca...' 'Yes Dad!' 'Do you know the facts about Meningococcal and Septicaemia...' 'Some Dad... I know that babies are at most risk... I know that people get ill more in Autumn/Winter... I know that teenagers and young children are most likely to carry the bug in the back of their throats...' 'Anything else handsome?' 'I know why it causes people to lose their legs and arms Dad... You explained exactly what happened when I was in hospital...' This pic was taken after Luca had just left hospital after almost 6 months!  During the first week of being in a coma his heart rate was 200bpm for 24hrs a day! (Heart of a Lion)  His body was burning through 3,000 calories a day just to repair the damage and he was still losing weight!  He had holes drilled into what was left of his kneecaps to encourage healing and blood supply! (His open knee wounds grew together at 1mm per day)  He wore a compression suit 23hrs a day to aid scarring!  His medication count had been reduced from 24 to a handful after going through full withdrawal(he had become a drug addict and went through hallucinations and cold turkey)  After the surgeons had removed all the dead skin,  tissue and bones Luca had donor skin stapled to his body to prevent infection.  This had to be removed every few days to stop it growing onto his body, as him immune system was so low!  When I told him he would lose his legs and get clip on legs his reply echoed for eternity... 'Can I have BLUE ones Dad!' He was 3 years old!! He is sat next to one of the most humble and breathtaking people we know.  Steve lost his legs as a teenager and no doubt faced equal hardships... No matter the trauma... His humour and positive outlook gave all of us hope.  Including a 3yr old who wanted different colour legs and springs!  Know the symptoms... Know how quick to react... #forluca #son #smile #loveis #love #support #sacrifice #father #dad #proudfather #share #lifestory #amputeelife #amputee #cliponlegsrock
What is Meningitis awareness... In truth... It's is Fear!  Fear of what this horrendous disease can do to a healthy person in hours... 'Daaaaad... What's the worst disease in the World?' 'I'm not exactly sure handsome...' 'Was mine the worst?' 'I don't know of many that could kill in a few hours handsome...' 'That's cool Dad... That means I beat one of the worst!' This disease brought me to my knees.  It stripped everything from me... And yet... For the one it took the most from... You only see the cool part of beating it and surviving!! This week we will share snippets of your battle and journey to raise awareness of your strain of Meningitis and Septicaemia... You certainly did beat it handsome... #forluca #son #smile #loveis #love #support #sacrifice #father #dad #proudfather #share #lifestory #amputeelife #amputee #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #inspiration #menigitisawareness
Every parent has an aching inside them... For their children to surpass their wildest dreams... To make them proud whatever their vocation and to go on to become amazing parents themselves... You have already achieved more than I could ever imagine boys... The smallest of things make for the best of memories... Just like one scoops on the Pier during the rain after zero sleep... 😀  Today we broke free and you made me smile that little bit wider... #forluca #son #smile #loveis #love #support #sacrifice #father #dad #proudfather #share #lifestory #amputeelife #amputee #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #inspiration #weekend #icecream #sundayfunday
Just waiting,  medicine,  massages, cream,  rest and repeat... I can sense that you are getting slightly frustrated by being housebound... We made a fair few deals today Luca... Partly to pass the time and also to keep your mind positive... My favourite 2 were... 1- That you will live to 100 so you can allow 3% of your life for operations... 2- That I promise to never touch the scar/graft on your left arm... It is your favourite scar and has a unique criss cross pattern where your graft was placed onto what was left of your tricep... (You often sit there just stroking it...) I asked you why the 3% Luca and you had the most eloquent reply... '3 reasons really Dad! 1 is that I was 3 when I had Meningitis. 2 is that I only had a 3% chance of living.  3 is that 3 years is allot of time to spend in hospital!' 'Fair points Luca.  We'll work on keeping below that 3% Hey...' 'OK Dad...' #forluca #son #bravery #brave #proudfather #amputeelife #amputee #inspireothers #inspiration #lifestory #weekend  #scars #skingrafts #recovery
We were low on smiles today... Well until you gave me this as I tucked you into bed... There is no better feeling handsome... No bigger responsibility... I will never be perfect Luca but I will always be there so you can call on me... #forluca #son #smile #loveis #love #nighttime #bedtime #proudfather #smile #friday #amputeelife #amputee #boysclub #dad #daddy
Home... I will be right here beside you handsome... Why am I so proud of you?  It is not the amazing things you do swimming,  wheelchair racing,  playing football,  academically,  etc... It is the small every day parts of your life... In truth they are the parts any normal person would struggle with most... You face them head on, with the widest smile!  We have a mission to work on that smile this weekend... I could not love you more!  #forluca #son #smile #loveis #love #support #sacrifice #father #dad #proudfather #share #lifestory #amputeelife #amputee #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #inspiration #lifestory #home #sleep #bedtime
'What drugs did they give you handsome...' 'Daaaaad... They aren't drugs.  They are medication...' 'Sorry... What medication?' 'Marzipan and Aniseedetic...' 'They sound Ummmmm... Interesting... Did they work?' 'I think so... I can't feel my face...' 🙈  #forluca #lifestory #amputeelife #amputee #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #inspiration #proudfather #drugsdontwork #selfie #loveis #love #nighttime #bedtime #eyes
You are even brave in your dreams handsome... I am so sorry you have to face these hurdles throughout your life... I would swap places with you in a second!  I'm not sure I could be so brave though... Dream big!  We'll just sit back and watch in awe... #forluca #son #bravery #brave #proudfather #amputeelife #amputee
Luca in his happy place... Dad in his (slightly nervous, as you hold on with one hand screaming 'Dad take a pic') place... 'Have you done this before Luca?' 'I'm sort of an expert as I do it without legs...' 'Ummmm... OK. Up you go then'  #forluca #son #smile #loveis #love #support #boysclub #climbing #amputeelife #amputee #meningococcal #septicaemia #meningitis #inspiration #lifestory #inspireothers #newheights #views
Our happy place... Just us... Not a care in the world... Today we just blanked out 3hrs to do nothing but talk,  walk and wheel... (while I ran to keep up)  We did have to take up 20mins deciding on the ice cream flavour though... #forluca #son #smile #loveis #love #weekend #sunshine #shades #aviators #pier #penarth #proudfather #lifestory #amputeelife #amputee #inspireothers #icecream
It is easy to see your scars on the outside Luca... The hardest part to deal with is the damage that is invisible... Bedtime tonight was full of tears... No one could ever deny that you don't show your emotions... You struggle to hide them as they become such a big part of your life... Another operation Monday and I will never imagine for a minute it is easy for you... No 'be brave'  or 'man up'  comments needed... Just a gold old shoulder shaking cry on my arm... Night handsome brave boy!  #forluca #son #tears #sleep #bedtime #friday #weekend #operation #scars #inspireothers #inspiration #lifestory #proudfather
Throwback Thursday... 4 years ago to the day handsome... We were up until 10pm while on a boys trip to London... Absolutely exhausted I still remember you asking for scrambled eggs and chocolate on top for breakfast!! 🙈  Yes... We tried it too... Not that bad actually 😉  You have remained one of the amazing constants in my life Luca... You are simply breathtakingly beautiful from head to the end bit of your legs! 💙  #forluca #son #tbt #loveis #love #nighttime #bedtime #eyes #inspireothers #inspiration #lifestory #proudfather #amputeelife #amputee #london #londonlife
'Dad... I've left you a treat... I'm off to bed...' 'You tired handsome...?' 'No I promised Zack I would read with him to send him to sleep...' 'That's a lovely thing to do...' 'I know Dad... He's giving me £5 to do it too...' 🙈🙈🙈 Happy Humpday... #forluca #brothers #sons #brotherlylove #dad #proudfather #smile #selfie #loveis #love #nighttime #bedtime #eyes #inspireothers #inspiration #lifestory #humpday #reading #tired
1st day of school... Done!!! No words boys... No words... #forluca #brothers #sons #brotherlylove #dad #proudfather #smile #selfie #loveis #love #schoolsout #coffeebreak #amputeelife #amputee
I lied when I said that life is normal... It couldn't be any further from the truth!! Life is extraordinary!! Life is breathtaking!! Life is unfair!! Life is awe inspiring!! Life is hard!! A friend asked me today what I did on the weekend... 'Just chilled and spent time with boys... Just normal'  I was so wrong... You and Zack make life worth living... You both make everything brighter and as far from normal as it could be... This is your face when we found out tonight that you have another operation before your big operation... 'No big deal Dad... I'm sure we can manage OK...' You give me a strength I cannot put into words... I am shedding a tear on your behalf tonight Luca as your life is too wonderful to cry... #forluca #son #smile #loveis #love #support #sacrifice #father #dad #proudfather #share #lifestory #amputeelife #amputee #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #inspiration #lifestory #live
5 hours trying on trainers... 🙈  I kid you not... Nike,  Vans, Superga, Nike,  Vans, Superga, Nike,  Vans,  Superga... We even had to have a lunch break to discuss what ones to choose out of the dozens you tried on... We reached a compromise of one Nike and one Vans 🙈🙈😂 Special thanks go out to every shop assistant today that made Luca feel so special and normal as he wheeled in on his chair with 2 feet on his lap!! #forluca #son #smile #loveis #love #sundayfunday #weekend #amputeelife #amputee #cliponlegsrock #wheelchair #newkicks #feet #nike #vans #superga #inspiration #lifestory #inspireothers #nikeair #prosthetics

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