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@forluca

For Luca

forluca

Inspirational life story of my son and amputee Luca... Mixed with a love for beer, coffee and cycling...

  • 3K Total Likes
  • 162 Tot. Comments
Mondays... You can never be too poorly for NERF guns!! This was post dressing change and you sat laughing as your leg shook uncontrollably... 'It's just my leg being lazy Dad! It wants to go back to bendy position but that's rubbish for my clip on legs!' 'You OK though?' 'I am Dad.  Do you know it's been 3 weeks already...?' 'No.  I didn't.  That's gone really quick...' In truth I have counted every min since your went in to surgery 3 weeks ago... #forluca #son #smile #loveis
Behind that smile it has been the toughest few days... You have hardly slept a wink as we struggle to control your leg spasms... Medication at its max and you still manage to sit and play with your brother smiling your head off!  Zack even let you win the 'Who's the Bravest' game tonight too... My entry of having a stab wound barely made it to 3rd place 🙈😂 You are both the bravest boys I know... I am so sorry life is not as we planned it... Needless to say... You are still smashing every day!! #forluca #brothers #sons
The best view I could hope for on a Saturday night... You drifted off after tonights man to man conversation... 'Dad... I just want my leg to be normal...' 'I know handsome.  That's what we are doing with your frame...' 'No Dad... I just want my eczema to go on my blue (right) leg...' 'You are so amazing Luca!!!' 'Why Dad...' One day you will realise why handsome... I am a little bit more in love with you tonight!  #forluca #son #sleep #bedtime #amputeelife #amputee #rest #recover #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #inspiration #lifestory #proudfather #weekend #views
A huge thank you to Roni and Mark who ran the mascot race at the Gwent Dragons this eve... We watched from London village with huge smiles!! Don't think those shoes are easy to run in 😂🙈 #forluca #handsupforluca #gianthands #costume #mascot #run #running #dragons #rugby #friday #friyay #loverugby
These are the moments I sneak in to tuck your blankets in... These are the moments that I sit at the end of your bed and just soak up all the strength you have... These are the moments when our roles are reversed... These are the moments where I want you to be proud of me... Night handsome boy!  Zack is tucked in too... #forluca #son #sleep #bedtime #amputeelife #amputee #rest #recover #scars #inspireothers #inspiration #lifestory #proudfather #brothers #pride
I will remind you of this day for years to come... Today is your 9th Birthday!  Almost 6 years since you lost your legs and so much more handsome... You spent it without a wink of sleep as you adapt to your leg being pulled into a different shape... Still smiling though!  Someone once told me that amputations are the easy part to deal with... At the time I thought they were crazy!! In truth.  They were right.  Your skin,  tissue loss and bone damage has been your biggest hurdle!! We will TBT to this day forever more!! HAPPY BIRTHDAY HANDSOME!! See you tomorrow for the biggest Cwtches!! #forluca #son #smile #loveis #love #support #sacrifice #father #dad #proudfather #share #lifestory #amputeelife #amputee #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #inspiration #blackandwhite #tbt #picoftheday
When you've been on the gas and air all day... 'What have you done today Luca!?' 'Basically... I can't remember Dad!' One day you might remember the Christmas sandwiches you order 😂  Weekly hospital visits in Bristol made slightly more fun by Mum putting in wrong postcode and taking you on a detour to Somerset 🙈🙈 Keep smiling handsome. There are plenty more sandwiches to come... #forluca #son #smile #loveis #love #treat #costa #sandwich #amputeelife #amputee #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #inspiration #lifestory #proudfather
Catching up on school work... The work never stops handsome... You might be out of school but you can still beat me hands down on squeebles 🙈🙈 If you haven't seen the app.  Check it out... Luca has now won all my pocket money off me to buy more NERF guns... #forluca #son #smile #selfie #loveis #love #support #study #maths #schoolsout #school #monday #squeebles #amputeelife #amputee
Bravery doesn't come from the smiles we all see... It comes from the hard work and determination you show during all the moments you can't smile... This decision was 100% you Luca... You showed such maturity knowing the risks and the short term pain... In typical fashion you don't want to hide any part of your legs,  treatment and recovery... Dressing changes now down to 2hrs flat.. 👍  Holes are looking awesome! How cool is it to have an Ironman leg! 😉  #forluca #son #smile #loveis #love #support #sacrifice #father #dad #proudfather #share #lifestory #amputeelife #amputee #cliponlegsrock #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #fixator #bravery #brave
Rugby day means one thing... Bring out the Red Headphones 🙉  If you saw Zack today then you witnessed him dancing,  jigging and singing to himself for the whole day... (U2,  Reef and Elbow today)  Well... Apart from when he was eating and watching Rugby with his Big Bruva!  It is equally as scary for you Zack.  Since Luca has come out of hospital you have begged us to take his frame off,  cried your eyes out when you accidentally knocked Luca's frame.  Also you have written a daily journal just about you and Luca... It starts each day with 'My Bruva...' You are his Rock in every way Zack!  I am so proud of you!  #brotherlylove #brothers #sons #forluca #son #smile #loveis #love #support #sacrifice #father #dad #proudfather #share #lifestory #inspireothers #inspiration #zack #rugby
When you cannot decide what to have for Breakfast 🙈🙈 Start the day as you mean to go on... Full of eggs, bacon,  more eggs,  parma ham,  more eggs,  muffins,  more eggs,  muffins,  toast,  avocado,  potatoes, halloumi and a huge smile!! #forluca #son #smile #loveis #love #breakfast #juice #eggsbenedict #eggs #hash #breakfastclub #weekend #bacon #coffee #fuel #avocado #avo #cocorico #pattiserie
Life is full of tough decisions... Most are tougher than 'Chai Latte' or 'London Fog'  You have made tougher decisions than I ever could in my life Luca... This week you decided that you needed to watch your dressing change up close... It sounds fairly straight forward right?  You still deal with the most gruesome events with such ease... 'Take a picture Dad!! That is Epic!! I have 3 massive holes in my leg with the pins going in... Take a picture,  quick.  You can write a post about it for me...' I am an adult Luca and I am yet to find the words to accompany that image... Your bravery is not measured by medals... It is measured by these moments  #forluca #son #bravery #brave #proudfather #amputeelife #amputee #inspireothers #inspiration #lifestory #scars #skingrafts #fixator #friday #weekend #chai #londonfog #cafe
There you are!! Your first test outing today... We shared cake and London Fogs!! All whilst you crushed me at Monopoly 🙈🙈 One step at a time Luca... Your smile shows us that we are moving at the right pace... #forluca #son #smile #loveis #love #coffee #coffeebreak #londonfog #cafe #treat #humpday #monopoly #amputeelife #amputee #recovery #flatwhite #cake
Behind every amazing boy is their equally amazing Mother... It is hard to put into words what your Mum does for you boys... Over the last week she has spent 24hrs a day with you. Been there for every test, medication and bed pan... I tallied up that she slept 11 hrs in 5 nights 😞  If you ever wanted to now what love is...? Walk a mile in Mum's shoes.  Her love has no boundaries and she has fought more battles for you than I can remember... She epitomises devotion... Plus she also gave you your beautiful eyes... #forluca #brothers #sons #brotherlylove #proudmum #loveis #love #support #sacrifice #mum #amputeelife #amputee #meningococcal #septicaemia #meningitis #inspiration #lifestory #inspireothers #blackandwhite #selfie #motherslove #devotion
I have never known Luca be so proud of his legs as he has been this week... 'Perfect Dad...' 'What is handsome?' 'My new leg Dad... Just need to wait for the other one and they'll almost be perfect...' This simple conversation tonight shows one thing... Beauty truly is in the eye of the beholder... You see past all your scars,  tissue loss and amputations... These are your legs and you will damn well make sure they are perfect... To me.  Your new leg looks amazing and it won't be long before we mould a new clip on leg for you... #forluca #son #newleg #amputeelife #amputee #cliponlegsrock #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #inspiration #lifestory #proudfather #mondaymotivation #perfect
What does Monday club produce when you have to rest your leg...? Yep... Oreo Cheesecake!  Simple,  tasty and entirely made by Luca with a little help From Zack... #forluca #son #monday #mondayclub #oreo #cheesecake #bakeoff #boys #boysclub #treat #rest #recover
Sunday Funday!! Brothers back together simply doing one thing... Supporting each other... And shooting each other with Nerf guns... 🙈🙈 Normality has resumed... What frame?? #forluca #brothers #sons #brotherlylove #dad #proudfather #boysclub #sunday #sundayfunday #weekend #amputeelife #amputee #pose #inspiration #lifestory #inspireothers #frame #fixator
So the real work starts Monday... So many people have asked what the frame is for... Here is Luca's rundown... 'Basically(he uses that word before every statement 🙈) I have 3 large pins screwed into my thigh bone.  You can see these at the top.  These hold my top ring.  Then I have 4 wires that go into my shin bones. It looks like 8 as they go in and out the other side. These are attached to the bottom rings.  Between the rings are my pistons. Mum or Dad move these 1mm every day. This pulls the middle ring straight with the top and resets my knee. The 3rd ring is there for the doctors to break my shin bone and straighten it after it is straight. The doctors have promised this will only happen if my leg can take it after this procedure...' 'Well done Luca. Good description' 'Oh... I forgot to say you broke the clips on the first day Dad!!' 'Better to break them early and know we have spares Luca..🙈🙈.' 'OK 'Shovel hands' Dad'  #forluca #son #newleg #fixator #frame #amputeelife #amputee #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #inspiration #lifestory #proudfather #smile #weekend
If you are just waking up,  eating breakfast,  preparing for a fun weekend... This image will hopefully make you do everything with a huge smile!! Luca made it home last night!! Must have been the nagging to the doctors for 4 days solid 😂😂 Go and do something you've never done before this weekend... Life is for living... #forluca
'Dad... I can't really remember anything from this week...' 'Can you remember having dressing changes?' 'Nope...' 'Nanny coming to visit?' 'Nope...' 'Having Christmas sandwiches for lunch today?' 'I had Christmas sandwiches? Can't remember that bit either...' Ever wondered what a the concoction of Morphine, Epidural, Tramadol,  Oralmorph,  Diazipan and Gabapentin does... He has the very best sleeps though!  #forluca #son #bravery #brave #proudfather #amputeelife #amputee #inspireothers #inspiration #lifestory #meningococcal #septicaemia #meningitis #skingrafts #scars #bravery
'Dad... I'm really happy with my frame!' 'That's good handsome... Pain level out of 10.  With 10 being worst pain you've ever felt?' 'Around a 5 Dad but I can manage that... If it gets to a 6-7 then you need to get me Tramadol from the nurse.  If it gets to 10 like earlier I need you to summon the pain team and get me gabapentin and oralmorph ASAP!' When you have been summoned by Luca you best have the meds ready 🙈🙈 Just simply the best and most grown up man to man chats today Luca.  We spent this evening looking at different leg options,  leg lengthening options for when you are older,  and discussing every detail of what your frame will do... Oh... And we also had an hour break to get a Christmas Costa!  It was like a Holiday!! The little things eh...? #forluca #son #smile #loveis #love #support #sacrifice #amputeelife #amputee #meningococcal #septicaemia #meningitis #skingrafts #scars #inspireothers #inspiration #lifestory #hospital #operation #fixator #newleg #newknee #pride #legday #bravery #coffee #coffeebreak #hotchocolate #christmas

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