Picbear logo Browse Instagram content with Picbear

#spoonielife

Posts tagged as #spoonielife on Instagram

280.525 Posts

So I went to the rheumatologist today for a follow up about my psoriasis which has gotten worse and since it's getting to be winter and it's getting really hard for me to function and because my psoriasis is getting worse and worse he decided that the next step is to put me on a type of chemo called 6MP he also drew for baseline labs today once he gets those results back I'll start the medicine but I'll have to wait a little longer than that because tomorrow I'm starting a 5 day course of heavy duty antibiotics because I somehow got bronchitis so I currently feel like I'm coughing up my lungs #spoonie #spoonielife #chemo #round2 #psoriasis #autoimmuneproblems #bronchitis #rheumatology #antibiotics
Sometimes life stops and you get thrown in a hospital admission and shoved on IV antibiotics for a couple days. And that's okay. Life isnt perfect, and especially with chronic illnesses. Life happens, and sometimes all you can do is deal with it when said life throws infections at you. Lol (Yes I'm fine. Im discharged now and on alot of meds. Dont worry!) ° ° #childrenshospital #childrenshospitalomaha #celulitus #sinusitis #servicedog #germanshepard #bordercollie #servicedogsofinstagram #servicedogintraining #sdit #servicepuppy #medicalalertdog #dysautonomiaawareness #makenoiseforturquoise #dysautonomia #servicedog #neurocardiogenicsyncope #pots #posturalorthostatictachycardiasyndrome #spoonie #spoonielife #chronicillness #invisibleillness #hypoglycemia #seizures #ibs #gastritis #bloodpressure #heartrate #palpitations #symptomatic
My #daughter is here visiting on her  #thanksgiving break....#Chattanooga #zoo time today πŸ˜πŸ’œπŸŒ³ #proudmama #futurenurse #bsn ---- Can't wait to share some cool shots of some animals soon with Y'all too 😜
πŸ‘Š
FOOD FOR MY MOOD πŸ₯πŸ₯‘πŸ…πŸ₯•trumps food for my scale any day! . And HECK YES! I have treats often! (Well ones that my food intolerance will allow! Ha!) . What's your favourite food to fuel you? . I'm a bit (ok a lot) obsessed with boiled eggs at the mo haha πŸ˜‚
3 pokes, 2 hours, 1 arm [2hr glucose test]  Because the veins in my right arm have been poked and prodded so many times over the last 10+ years, they've completely given up!
Love this face! #leightonjames #babyboy #mywhy
I’m excited to announce the publication of an article, A Life Saved By Genetic Sequencing, on Yale Medicines website about my journey to diagnosis with Familial Partial Lipodystrophy. The link to the article is in my bio. #rarediease #rarediseaseawareness #geneticsequencing #alifesaved #lipodystrophy #lipodystrophyunited #spoonielife #sickgirlsclub
I have to share this picture of our book-cabinet now hat the husband rearranged it after our move. I could stare at this forever. πŸ˜πŸ€“πŸ’› Sadly though, I end up reading E-books because of the ease of reading as opposed to having to hold up a paper back or a heavy hardbound. Once in a while though I'll use a book stand or some combination of pillows to help. Nothing beats a good old paperback πŸ’›  #invisibleache
When you're starting a new med in the next month and you're family creates a care package for you. Including an elephant pillow, new blanket, a hoodie with zippers on the sleeves so I can wear it while I get my infusion, mints, comfy clothes, masks to protect me, facewash and lotion, chapstick and ginger candy. #familybeforeeverything #myfamily #myfamilyisthebest #nervousandexcited #lemtrada #startofmylemtradajourney #love #fightingformyhealth #chronicillness #chronicallyillmom #chronicillnessawareness #autoimmunedisease #invisibleillness #invisibleillnessawareness #invisibleillnesswarrior #spoonie #spooniestrong #spooniefighter #spoonielife #multiplesclerosis #multiplesclerosismama #multiplesclerosisfighter #nevergiveup #neversurrender #thankyou #loveyouguys #imstrongerbecauseofyou
How you feel when you submit your first hand drawn logo project to your team member to be digitized. (Hint: exhausted+happy) #freelance #cyll #createyourlaptoplife #nilagauldenmedia #naptime #allthewine #spoonielife #logodesign
A penny for your melancholy thoughts? #realism #walkerevans #photography #art

Loading